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| | !<big>→</big> | | !<big>→</big> |
| | !<big>Caregivers can bear the financial costs of care</big> | | !<big>Caregivers can bear the financial costs of care</big> |
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| − | === '''Respite care options are accessible to caregivers → Caregivers can easily access respite care''' ===
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| − | *'''Home-based respite services are convenient, but are expensive and not always available. Centre-based services are routinely available, but their operating hours can be restrictive for working caregivers. Caregivers also differ in their utilisation and acceptance of respite care services.'''
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| − | {| class="wikitable"
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| − | | style="width: 33.3%;" |'''<big>Programmes</big>'''
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| − | | style="width: 33.3%;" |'''<big>Gaps</big>'''
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| − | | style="width: 33.3%;" |'''<big>Ideas</big>'''
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| − | |'''[https://www.sgenable.sg/pages/content.aspx?path=/for-adults/home-based-care-services/ Home Based Care Services]'''
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| − | *Provides alternative care support for adults with disabilities, with the aim of keeping them in the community for as long as possible.
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| − | *Delivers services such as therapy, personal hygiene care, housekeeping and medication reminders.
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| − | *2 service providers as of 01 July 2018 - AWWA and MINDS
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| − | *Caregivers reported a lack of opportunity for respite, especially when care recipients require round-the-clock care<ref name=":16">https://ink.library.smu.edu.sg/cgi/viewcontent.cgi?article=1007&context=lien_reports</ref>
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| − | *'''[Need to know what are the costs like to use these services]'''
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| − | *'''[Need to know utilisation rates of services by caregivers of PWDs]'''
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| − | *To consider commercialising caregiving (e.g. piecemeal/gig caregiving services)
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| − | **In light of an ageing population, decreasing family sizes and caregiver fatigue
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| − | **Can also consider tapping on people who live in the neighbourhood/not working with free pockets of time to provide paid, temporary caregiving services, with financial remunerations and incentives
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| − | **Examples from the eldercare space: '''[https://www.homage.sg/ Homage]''', '''[https://www.jaga-me.com/ Jaga-Me]''', '''[https://www.caregiverasia.com/?locale=en-SG Caregiver Asia]''', '''[https://www.activeglobalcaregiver.sg/ Active Global]'''
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| − | |-
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| − | |'''[https://www.sgenable.sg/pages/content.aspx?path=/for-adults/drop-in-disability-programme/ Drop-in Disability Programme]'''
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| − | *Provides social, recreational and/or therapeutic training activities for persons with disabilities for a few days a week up to 9 hours
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| − | *4 DDPs provided by Thye Hua Kwan Moral Charities as of 01 July 2018
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| − | |'''[What is the utilisation rate of these services?]'''
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| − | |-
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| − | |'''[https://www.sgenable.sg/pages/content.aspx?path=/for-adults/day-activity-centres Day Activity Centres]'''
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| − | *Community-based facilities that provide care and skills training to persons with disabilities aged 16 and above.
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| − | *30 DACs as of 11 Sep 2018
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| − | *[https://www.msf.gov.sg/media-room/Pages/Number-of-Day-Activity-Centres-clients-and-staff-in-DACs.aspx Clients]: 1,200 | 200 are young adults
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| − | *"DAC operating hours are mainly till 4 or 5pm, thus caregivers who use DAC services find it difficult to find full-time work. Part-time employment opportunities are limited too, if un-ideal."
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| − | *Consider operating DACs on a shift system to complement working hours of caregivers, e.g., 7.30am - 2.30pm | 12 noon - 7pm, or to open till later
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| − | |-
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| − | |'''[https://www.sgenable.sg/pages/content.aspx?path=/for-youths/homes-for-children-with-disabilities/ Children Disability Homes (Short-Term Respite)]'''
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| − | *Provides long-term residential care, but also short-term respite care for those whose families are unable to provide care temporarily.
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| − | *3 homes provide respite care services as of 13 August 2018
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| − | * '''[What are the costs like to use these services?]'''
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| − | * '''[What is the utilisation rate of these services?]'''
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| − | |-
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| − | |'''[https://www.sgenable.sg/pages/content.aspx?path=/for-adults/homes-for-adults-with-disabilities/ Adult Disability Homes (Short-Term Respite)]'''
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| − | *Provides long-term residential care, but also short-term respite care for adults with disabilities whose caregivers are temporarily unable to provide care for them.
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| − | *8 homes provide respite care services as of July 2018
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| − | * '''[What are the costs like to use these services?]'''
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| − | * '''[What is the utilisation rate of these services?]'''
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| − | |-
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| − | |Respite services offered at selected day care centres and nursing homes under the ambit of AIC
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| − | *AIC page and E-Care Locator [https://www.silverpages.sg/care-services/Respite%20Care '''here'''].
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| − | |[http://www.come-into-my-world.com/one-child-one-skill '''One Child One Skill''']
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| − | *A volunteer project that sends pairs of tertiary students to homes to teach autistic children a skill over 8 one or one-and-a-half-hour sessions
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| − | *Parents identify skills that they would like their autistic children to learn and volunteers choose the child they teach based on the stated skills and location.
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| − | *Caregivers also obtain respite
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| − | |"While caregivers welcome the opportunity for respite, some expressed concern about students’ well-being in taking care of and working with their children without parental supervision."
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| | |} | | |} |
| | | | |
| | === '''Caregivers acquire reliable information and skills to perform care → Caregivers are equipped with information and skills on caregiving''' === | | === '''Caregivers acquire reliable information and skills to perform care → Caregivers are equipped with information and skills on caregiving''' === |
| − | * '''While referral, information and training resources are available, caregivers remain uneven in their knowledge about disability, and support received — they desire to access more rigorous training to better perform care.''' | + | * |
| − | {| class="wikitable"
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| − | |-
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| − | | style="width: 33.3%;" |'''<big>Programmes</big>'''
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| − | | style="width: 33.3%;" |'''<big>Gaps</big>'''
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| − | | style="width: 33.3%;" |'''<big>Ideas</big>'''
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| − | |-
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| − | |'''Diagnostic Agencies'''
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| − | (e.g., hospitals)
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| − | |For caregivers of children diagnosed with disabilities, touchpoints are [https://www.ncss.gov.sg/Press-Room/Publications/Detail-Page?id=Understanding-the-Quality-of-Life-of-Adults-with-D poorly equipped] in advising parents on where to obtain reliable help during the post-diagnostic phase
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| − | *Recommendations from EM3 that MSF will consider<ref name=":122">https://www.msf.gov.sg/policies/Disabilities-and-Special-Needs/Documents/Enabling%20Masterplan%203%20(revised%2013%20Jan%202017).pdf</ref>
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| − | **Recommendation 3, Strategic Direction 1: Improve transition management
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| − | ***For newly-diagnosed cases, to set up an agency to provide case referral, care planning and advisory services, and to facilitate smooth handover of information to other agencies
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| − | ***Includes developing a standardised case management tool between primary support agency and other service providers
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| − | |-
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| − | |'''[https://www.neurodivercitysg.com/ NeuroDiverCity]'''
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| − | *Gathers and shares inclusive services and resources that can be reviewed by parents
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| − | |'''[Need to know how useful and utilised the website is to how many users]'''
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| − | |-
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| − | |'''[https://allin.guide/ All In]''' (in development)
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| − | *Aims "to be a one-stop platform where caregivers can find everything they need" on special needs - guides, assessments, e-shop, blog content, events and courses
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| − | |'''[https://www.sgenable.sg/Pages/Home.aspx SG Enable]'''
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| − | *Currently provides the most comprehensive information covering financial assistance, hospital and training support
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| − | *[https://www.sgenable.sg/uploads/Caregiver%20Support%20Service%20Matrix.pdf Caregiver Service Matrix] caa 02 August 2018
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| − | *Hosts the '''[https://enablingvillage.sg/tenants-all/caregivers-pod/ Caregivers Pod]''', a space for caregivers of people with disabilities, and stakeholders to organise activities and events
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| − | *Knowledge and level of assistance received by caregivers differ depending on the experience and knowledge of providers they meet<ref name=":02">National Volunteer and Philanthropy Centre (NVPC). (2017). Issues faced by people with disabilities in Singapore. Retrieved from <nowiki>https://www.nvpc.org.sg/resources/report-on-issues-faced-by-people-with-disabilities-in-singapore</nowiki></ref>
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| − | *Some caregivers deny that children have special needs '''[is this a significant number of caregivers? Why deny?]'''
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| − | *Some caregivers reject support services for those in their charge.<ref>http://www.asiaone.com/health/plight-caregivers-disabled-children</ref>
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| − | *EM3 (Recommendation 13)
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| − | **For social service agencies to have a good understanding of community resources available for advisory and referral; one method is a one-stop portal to provide information on service, caregiving, self-care assistive technology and well-being<ref name=":122" />
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| − | **Hub-and-spoke model for caregiver support, instead of having caregivers be supported through services accessed by care recipients. NCSS to pilot the model together with service providers.
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| − | *To assign one case worker for each PWD, for his/her entire lifetime<ref name=":02" />
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| − | *Caregivers need help to understand the trajectory of caring – what to expect, anxieties and challenges, expectations as well as future planning - and to navigate the system of care
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| − | *To integrate various secondary caregivers such as social workers and medical personnel with primary caregivers<ref name=":02" />
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| − | *To consider establishing dedicated Caregiver Spaces as neighbourhood CCs for caregivers' travelling convenience, and have CCs be touchpoints for access to SG Enable's information & advice on caregiver support services - a municipal service system
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| − | |-
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| − | |'''[https://www.cal.org.sg/ Caregivers Alliance]'''
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| − | *Provides information, referrals, skills training and other support services
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| − | |'''[https://www.sgenable.sg/pages/content.aspx?path=/caregiver-support/training-courses/ Caregiver Training Courses by VWOs and KKH/NUH]'''
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| − | *Under the [https://www.sgenable.sg/uploads/Caregiver%20Support%20Service%20Matrix.pdf Caregiver Service Matrix], caregiver training and education are provided by 17 organisations as of 02 August 2018
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| − | *Some courses that caregivers are interested in attending are only open to social service professionals<ref name=":122" /> '''[How many, and what kind?]'''
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| − | *Especially for low-income families, some programmes are unaffordable due to high costs of service and comparatively low levels of subsidies<ref name=":02" />
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| − | *Training on strengths-based approaches? - Helping parents and caregivers to support their children/wards in building strengths and abilities as opposed to focussing on limitations and disabilities.
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| − | *Ask caregivers themselves how they would like to be supported, in relation to the relevance, usefulness and utilisation of training courses and care services<ref name=":17">https://www.msf.gov.sg/publications/Pages/The-Survey-on-Informal-Caregiving.aspx</ref>
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| − | *EM3 (Recommendation 13):
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| − | **To provide more and affordable courses (e.g., higher level training), and modes of training that are accessible to caregivers; for NCSS and MSF to work with relevant agencies to improve coordination and outreach to caregivers
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| − | **For service providers to make training options aware to caregivers
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| − | |-
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| − | |[https://www.silverpages.sg/financial-assistance/caregivers/Caregivers%20Training%20Grant%20(CTG) '''Caregivers Training Grant''']
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| − | *$200 annual subsidy for caregivers, per care recipient, every financial year, to attend training
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| − | |'''[How sufficient is this to cover the costs of training to care appropriately for a disabled care recipient?]'''
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| − | |'''Handbooks'''
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| − | *''[https://www.ncss.gov.sg/Press-Room/Publications/Detail-Page?id=Who-Cares Who Cares? Transforming The Caregiving Experience in Singapore]'' , a design ethnography by NCSS and fuelfor
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| − | *[https://www.awwa.org.sg/awwa_content/uploads/2017/08/AWWACaregiverService_CaregiversHandbook_English_V1.pdf ''Caregiving...The Journey Starts With You!''] by AWWA
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| − | *''[https://www.sgenable.sg/uploads/2013/09/Caregivers-Basics-101.pdf Caregiver Basics 101]'' by AIC
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| − | |'''[Feedback/utility rate/dissemination data on these publications?]'''
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| − | |}
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| − | | |
| | === '''Caregivers are in physical health and psychosocial well-being''' '''→ Caregivers can sustainably care for disabled care recipients to the best of their capabilities and capacities''' === | | === '''Caregivers are in physical health and psychosocial well-being''' '''→ Caregivers can sustainably care for disabled care recipients to the best of their capabilities and capacities''' === |
| | * '''There are some community-based support services for caregivers, though caregivers have difficulty finding time to access them — they continue to report stress from care work, and the need for self-care.''' | | * '''There are some community-based support services for caregivers, though caregivers have difficulty finding time to access them — they continue to report stress from care work, and the need for self-care.''' |
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| | *$200 monthly cash payout to support your loved ones with at least permanent moderate disability, i.e. always require some assistance to perform 3 or more Activities of Daily Living (ADLs). This grant can be used to defray the costs of caregiving expenses, such as the costs of eldercare and caregiver support services in the community, or hiring of a Foreign Domestic Worker (FDW). | | *$200 monthly cash payout to support your loved ones with at least permanent moderate disability, i.e. always require some assistance to perform 3 or more Activities of Daily Living (ADLs). This grant can be used to defray the costs of caregiving expenses, such as the costs of eldercare and caregiver support services in the community, or hiring of a Foreign Domestic Worker (FDW). |
| | | rowspan="2" | | | | rowspan="2" | |
| − | *Even after subsidies, the remaining cost to hire an FDW is still more than many low-income families can afford<ref name=":16" /> | + | *Even after subsidies, the remaining cost to hire an FDW is still more than many low-income families can afford<ref name=":16">https://ink.library.smu.edu.sg/cgi/viewcontent.cgi?article=1007&context=lien_reports</ref> |
| | *Employers must be of sufficient mental capacity to hire an FDW, and cannot have a disability that impairs mental capacity to this degree<ref name=":16" /><ref>https://www.mom.gov.sg/passes-and-permits/work-permit-for-foreign-domestic-worker/eligibility-and-requirements/employer-requirements</ref> | | *Employers must be of sufficient mental capacity to hire an FDW, and cannot have a disability that impairs mental capacity to this degree<ref name=":16" /><ref>https://www.mom.gov.sg/passes-and-permits/work-permit-for-foreign-domestic-worker/eligibility-and-requirements/employer-requirements</ref> |
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